The ACCF/AHA Clinical Practice Guideline Methodology Summit Report was just released, after more than a year of work. And at the top of the list of recommendations is the inclusion of a patient representative.
You can read all about this in our new patient blog, “The Activated Patient,” including comments from Drs. Deepak L. Bhatt and Ralph G. Brindis, who served on the Workgroups for this report.
Our Patient Education Editor has her own recommendations, one of which is:
“I urge our new patient representative to bring to bear personal narratives and insights of a broad spectrum of regular patients, to stay connected to the individuals who are on the cath lab tables, and to bring the voices of as many patients as possible into those well-appointed conference rooms, in an effort to inform the process of making heart disease decision-making and care more inclusive and responsive to the human experience of coping with illness.”